About Us
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About Rona
Rona Edwards was one in a million. When she was five, Rona got a one-in-a-million diagnosis. Rona's greatest wish was to be Princess for a Day at Disney. Her second greatest wish was to help kids like her. She and her father began recording “Rona’s Rockin’ Fun Lab” after her diagnosis so other children could learn about science and transplants from a kid.
7K
Rare Diseases
70%
Begin in
childhood
90%
Have no approved treatment
30%
Of these children die before their 5th birthday
Resources
We match pediatric care teams with resources that meet their patients' needs.
The FUN LAB Framework
In this talk, Lindsey Wahlstrom shares the lessons she learned as both a clinical research professional and a mother navigating her daughter Rona’s rare disease treatment. With six powerful ideas for reimagining pediatric research, she calls for a balance between the magic of science with the magic of life.
Getting to a Diagnosis
Getting to a diagnosis, and then to a treatment plan, is both chaotic and maddening in how long it can take to get answers. When someone you love is sick, you just want to do something. And often, the rate-limiting step to action is access to the right information at the right time.
2025 impact
When we founded Rona’s FUN LAB, we knew we didn’t want to build something loud or rushed. We wanted to build something thoughtful. Something informed by lived experience, shaped by the realities of care teams, and flexible enough to honor the uniqueness of every family’s journey. This past year was about laying that foundation.
